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{\header\pard\nowidctlpar\nooverflow\sl240\slmult1\tqc\tx4320\tqr\tx8640\fs20\par
}{\footer\pard\nowidctlpar\nooverflow\sl240\slmult1\tqc\tx4320\tqr\tx8640\fs20\par
}Monday February 16, 2004 \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Sorry
 for the long pause in updates. This weekend has been a busy one. (Even though it
 is a holiday weekend) \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is now drinking formula from a bottle!!! This is something we STRUGGLED to get 
him to do. But, he fought and fought back...Now he wants the bottle. He is taking
 a couple oz at a time, and wanting more. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 They 
Dr.s took him off the TPN (IV nutrition) today and increased his feeding tube intake
. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The BIG
 change...His blood counts are starting to rise on their own. His plateletts counts
, White Blood cells are rising. This is a good sign. He is not "out of the woods
" by far. But, he is at least now walking in the right direction. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thanks
 for your patience!! I am going back to his room now . \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 feb 12
, 2004\par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is DRINKING from a bottle! He is wanting the bottle, opening his mouth and reaching
 for it!! a BIG BIG BIG step, he has never had to eat by mouth. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 He is
 still bruising. His RBC, WBC and platelet counts are low. They continue to be low
. There are some options that have been presented to us .We are weighing them and
 trying to make a decisions. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thanks
 again for all the love and support. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is still in the Isolation in the ICU. He will be there for a while. \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 February
 11, 2003 {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 started the day flailing and being miserable. He could not get comfy. Then he fell
 asleep with the help of Ativan. He was in the highchair when he fell asleep. He
 cannot move around as much in the chair. When he flails - he wraps himself in his
 cords. There are LOTS of cords. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 This 
afternoon - Othello was sucking on cotton balls dipped in sterile water. He LOVED
 it! He usually hates things in his mouth. But, he could not get enough of it. He
 would open his mouth and whine for more. So - more cotton balls for Othello. {\fs20
\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is still bruising very badly. His body is all black and blue. His platellets are
 low still, as are his White and Red Blood cells. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Monica
 Buddemeyer (Amanda Buddemeyers mother {\ul\cf2{{\field{\*\fldinst{ HYPERLINK "http://www.buddemeyerfamily.com/"
}}{\fldrslt{\pard\nowidctlpar\nooverflow\sl240\slmult1 www.buddemeyerfamily.com}
}}}}) came to visit Othello and I today. Thank you Monica!! It was a great help 
for me. I needed to talk to a parent who could relate to what I am facing. She has
 been through the scares, the prolinged ICU stays and so much more. I can not start
 to understand the loss and pain she feels, but she can relate to how I feel - and
 she helped me feel reassured and helped me recompose myself. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 For all
 of you who are wondering what you can do to help out Othello... You can donate 
blood at the Fl/Ga blood Alliance in Othello's name. The account number is 7993. 
Please specify you want it creditted to Othello Smith. Even if you are not his blood
 type O+, you can donate. It will still credit his account, so his insurance pays
 less for each of the blood transfusions. The blood drive is Monday - call the Fl
/Ga Blood alliance for more inforamtion. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Also, 
you can make a tax deductable donation to COTA for Othello S by clicking here {\ul
\cf2{{\field{\*\fldinst{ HYPERLINK "http://www.kintera.org/FAF/home/default.asp?ievent=20858"
}}{\fldrslt{\pard\nowidctlpar\nooverflow\sl240\slmult1 http://www.kintera.org/FAF
/home/default.asp?ievent=20858}}}}} {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 I will
 update more as there is more to report. Thank you again for all the encouraging
 emails! {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Feb 10
, 2004{\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 was a bit out of contro this am. He was flailing and bashing his head, legs and
 arms on things. He has bruises all over his body. His arms, legs, back, sides, 
head, face, etc. The RN calls him the HUMAN BANANA!!! {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 He seems
 miserable. He does not want to be touched really. He slept most of the afternoon
. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 He had
 to get a platelette transfusion again today. Othello also had a couple of blood
 clots come out of his ostomy. His platellets are low. This is not good. He could
 "bleed out" at anytime. Or he could get an infection and not be able to fight it
 off. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Things
 are scarey. He looks bad. Hopfully he will pull an Othello and come out of it on
 top!! {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 feb 9
{\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 seems a little more like himself today. He has played with some toys, kicked the
 railing of the crib and he was babbling. Othello was awake more so today than he
 has been in a few days. This is always a positive sign!! {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 His WBC
, RBC and Platellettes are still low. We are still playng the waiting game with 
his bone marrow...to see if it will kick start itself. We are hoping that it does
. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The main
 concern right now, is preventing any more infections... Othello cannot handle a
 bombardment of infection, bacteria, virus, etc. It will be too tough for his little
 bosy to handle. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Right
 now, he is showing more of his Othello personality. This makes me feel a lot better
. I know that through the aches and pains, the cramps and discomfort....Othello 
is still in there fighting away. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 will be in the ICU for a while. He will need to remain in isolation until his WBC
 count increases..Which means...his bone marrow kicks in. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thanks
 for all the support and emails. They have been wonderful. {\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The days
 blur together. I am not sure if it was two or three days ago that Othello went 
into the ICU. I could sit here and count back and try to recall - but what use is
 it? He is in the ICU and no amount of backtracking will change that fact. {\cf3
\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Today
 h did kick the crib a few times. He grabbed onto me and hugged me. He watched bits
 andpieces of " The Emperors New Groove" with me. He eyes were barely open. But, 
he watched parts of it. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The doctors
 have now mentioned Bone Marrow Transplant. If Othello's bone marrow fails to kick
 in and produce White blood cells, red blood cells and platelettes - this would 
be the route they would want us to take with Othello. We are hoping that his own
 marrow kicks in. The Bone Marrow Transplant route is one that we do not want to
 take Othello onto. He has endured so muc pain, gne through more trials than imaginable
, taken in stride treatment after treatment. I am not certain that the adding to
 and prolnging of his suffering in necessary or desired. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 I understand
 we will be met with resistance. We will be met with various opinions and the likes
 on this...But, thus far, we have made the best decisions for Othello and our family
, I am confident that we will continue to do so...as a family. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 I am 
hoping that the bone marrow begins to work. As of the moment, he is not producing
 the blood cells needed. They ICU Drs/RNs have had to administer plateletts and 
red blodd cells these past few days. It has been decided not to continue giving 
the plateletts all the time, unless Othello begins to activly bleed out or show 
indications of needing them and his platelette count continuing to plummet. The 
reason: So Othellos boy does not start to fight and destroy platelettes (being given
 to or made by him) {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 OVer 
the weekend we found that Othello's stool cultures indicated he has Salmonella. (
HOW? you ask) Well, there are a coupls of ways this can happen. Since he has no 
immune system, he could not fight off anything. Therefore - when he was infected
, he could not ward off the bacteria. Salmonella can be spread by food products 
and/or improper hand washing after certain activites, etc. Salmonella was also found
 in his blood culture. It gets there through the intestines mainly, and can be fatal
. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 While
 in the ICU, he is being treated for the salmonella as well as being given many 
other antibiotics as precaution. He is on isolation, masks and gloves and religious
 handwashing MUST be practiced{\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thankfully
 the ICU and transplant teams are top notch. We appreciate all they have done for
 Othello and our family. We feel that no matter what decisions we all have to make
 and what outcome - that they have Othello's best interest at heart and mind. {\cf3
\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 In addition
 to the Salmonella issue and the Bone Marrow problem...Othello has had some other
 issues this past few days. He had a seizure the night he was transferred to the
 ICU. His sodium and his potassium were not in their target ranges. This caused 
him to have a seizure. Luckly, they are able to prevent this by correcting his electrolyte
 balance. So, we do not expect this to happen again. Othello has also had elevated
 blood pressure and heart rate, as well as respirations. They are closly monitoring
 him and will do whatever needed to keep him compfortable. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Right
 now he is "unstable" and has a tough fight ahead. Hopefully he will get some of
 his "fight : back and start to help the team of Drs., RNs, and Darin and I get 
him through this tough time. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thank
 you all for your suport and understanding. I realise this is a hard time for you
 all who have come to love and care for him..Please continue to understand Othello
 is our son, first and foremost, and we are feeling the pain a hundred fold. We 
are sorry if we seem distant, or abrupt...but this is a very trying time, a very
 emotionally and physically draining time in our lives as a family. {\cf3\fs20\par
}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Please
 keep Othello in your thoughts. Please, as well keep Sebastian in your thoughts. 
He is suffering too, - this is his little "baby Osmellio" and he is worried and 
misses him. {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 -Jennifer
, Darin, Sebastian and Othello (Osmellio) {\cf3\fs20\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Feb 6
, 2004{\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is not doing very well today. He has been in an ativan/morphine/benadryl induced
 sleep. He is miserable when he is awake and even when he is sleepign. {\cf3\par
}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 We have
 not gotten word about what the gram negative rod is yet. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
's blood pressure is elevated. Even when he is asleep and on morphine/ativan. In
 addition, he is retaining fluids and has to be given lasix to help him void some
 out. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Last 
night, the hyper-al (TPN) was restarted. Today 5 cc/hr of feeds were restarted as
 well. We are unsure how long he will be on TPN and/or food. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Today
 (saturday) Othello has not had a fever. This is good!! {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is requiring platelett and RBC tranfusions daily. His bone marrow is "sleeping" 
and not producing them. We are not sure if/when it will kick in and restart. There
 are barely any cells present. (as per the hem. Dr who did the bone marrow aspiration
) {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 This 
do not look good. But, he has snapped back from liver failure and GVHD before. So
, hopefully he will this as well. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Thanks
 for the patience between updates. I will try to give more as I can{\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 February
 4th {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 started tube feeds today. He is tolerating it well so far. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Yesterday
 his output was 400cc!! down from 1000cc!! He is doing better. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is perky and playful. Well, right now he is napping... {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 We are
 just trying to let whatever is going on, run its course. Hopefully he will continue
 getting better so he can come home. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 We miss
 home. We miss daddy and sebastian.. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 ebruary
 3, 2003{\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Labs 
have been drawn. Othello HATES getting poked with needles. He knows when they are
 coming...HeSCREAMS.{\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The drs
. think he may have an stomach "flu". The plan is to restart slow feeds. In two 
days if he is not tolerating and STILL dumping too much - they will start a central
 line and TPN temporarily. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 This 
weekends scope and biospy showed no signs of rejection. YAY! {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Dr. Selvaggi
 will be scoping Othello today. And Rumor has it - he is going to Broward...No more
 Dr. Selvaggi here in Miami! =-( We dont like that plan. Dr. Selvaggi-I know you
 read this....Othello is going to miss you a whole lot!!!! (as are all the parents
 and other kids) This place will definatly not be the same! {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 I will
 update you all later as to what is going on. {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Right
 now - Othello is eating his fingers. I think he is HUNGRY!!! He wants some oatmeal
. Heck I want some oatmeal too - or some REAL food!!! {\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 february
 2, 2004 {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 you never
 know when life is gonna throw another munkee wrench do you? {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 and I took a 5 hour trip to Miami. He rode in the cool Wolfsons Ambulance with 
Cathy and Dion and the nice drivers. I follwed in the car. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 is now in UM-JMH in Miami. (YIPPIES) {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 He has
 been dumping approx. 1 liter a day (about 9 times his norm) in his ostomy. {\f0
\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 I will
 let you all know more tomorrow. Labs, scopes and the works are in order for tomorrow
. Rounds are about 10ish....so look after 11ish for an update. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 feb.3
 {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 before
 rounds---labs have been taken. Last night stool samples and urine samples were 
taken also. Today- Othello will be getting a scope and biopsy. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 february
 1, 2004{\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 othello
 had a better night last night. he slept most of the night - waking up only once
 to scream. (still pleasant){\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 scope
 was done yesterday and biospsies were taken. the intestine looked a tad bit irritated
. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 labs
 have been taken again. the neupogen restarted. (his WBC count went down again) 
{\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 his
 feeding has not resumed. he is still on IV fluids. his output is VERY high. in 
the 700 range right now. his norm is 150. (as you can see a HUGE jump){\f0\cf3\par
}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 the
 EVIL letters were mentioned....TPN....if we cannot start feeds again soon, Othello
 may have to go back on liver killing nutrients. we do not want this. mellow yellow
 othello was a cute name and all....but liver failure is not cute in the least. 
{\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\qc\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 i 
will keep you all posted as i know more. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f0\cf3\lang1033\fs18\kerning28\line{
\f1\cf1 January 16, 2003} \par}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 PM{\f0
\cf3  \par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
 has chippered up a tad bit!! He is in better spirits right now. An hour nap has
 helped him.{\f0\cf3  \par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 The little
 guy is slightly dehydrated, so, Dr. S. has ordered a bolus of fluids. This in addition
 to the vivonex running at 60cc/hr for 24 hours - SHOULD get him back on track. 
{\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 He had
 a Renal Scan done today. They tech wrapped him in a straight jacket-esque contraption
 and he fell asleep. They filled him with radioactive (hehe) fluid and we watched
 as his kidneys and bladder filled up (on the screen). {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Scope
 slloked good. As you can imagine - no rejection of the Graft!!! The organs are 
doing well, looking marvelous. The colon showed less of an indication of the GVHD
 - which may/may not be an effect of the Campath. We do not know yet. {\f0\cf3\par
}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Othello
's potassium was good today. He did not have to get an anally administered dose 
of medication to bring it back down. This pleased him I am sure. {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 Awaiting
 pillows to shield his poor noggin from the evil crib rails!! {\f0\cf3\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 P.S. 
I get to sleep on the spare bed - no more foldy chair!! WOOOHOOO!!!!{\f0\cf3  \par
}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\cf1\lang1033\fs18\kerning28 January
 16, 2003 {\f0\cf0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello is
 by far the most miserable baby on the floor. Whining, crying, thrashing around 
in his bed. He has a halo pf bruises where he has been bashing his head on the crib
, me, the chair, the bed, etc. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Last night
, I requested benadryl to help him sleep. He was up thrashing an hour later. Crying
 so loudly, I could not hear myself think. I walked with him, rocked him, sang to
 him, etc. Nothing worked. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Some of the
 urine tests came back. Othello has elevated kidney function and some high blood
 pressure. (again) {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Rounds came
 and the doctors have changed a few things. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello is
 now on 60cc/hr for 24 hours of Pedivivonex. (So much for the trying to ween him
 off 24 hour feeds) They feel this will help bring his BP down, get his kidney fuction
 to normal and keep him hydrated....as well as put some weight back on. (This totals
 about 500cc more per day) {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 They have
 also ordered Ativan, twice a day. This should help him be calm and hopefully feel
 better. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 The Tcell
 subsets and other labs should be back soon. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello is
 not himself. He needs lots of hugs - but he bashes me in the face with his IV board
 if I try to hold him. He wants to be held - then he doesn't. He wants to sleep, 
but he fights it. M-I-S-E-R-A-B-L-E!!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 More later
...{\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 January - 
15 - 2004 {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello is
 doing well today. He slept all night last night. They gave him benadryl and Tylenol
 before the Campath infusion. This KNOCKED him OUT!!! I stayed up to make sure his
 IV did not mess up during the infusion. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 I, of course
, got barely any sleep!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 hahahahaaaa
. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 The urlogy
 dept has also been called in, by cardiology and transplant. The want to rule out
 any high blood pressure issues being caused by Kidney malfunction. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 All the labs
 look good. Skin biopsy is done. Campath is given - numbers from that will come 
in later today. He MAY require a second dose of campath - to insure he has no more
 cells to beat him up!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Kidney scans
, U/S, etc. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Cardiology
 studies {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Bone MArrow
 aspiration {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Scope and
 biopsy of intestines {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Are all still
 on the agenda this week!!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 More later
 on!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 January 14th
, 2004 {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\ul\f1\lang1033\fs18\kerning28 7:30 PM
{\ulnone  {\f0\par}}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Campath will
 be administered within the hour. Othello will officially be on isolation! He will
 have no way of fighting off any cooties. Hopefully this will eliminate all donor
 cells that are fighting and beating his immune system and body. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\i\f1\lang1033\fs18\kerning28 Sebastian
 note: All girls: STAY AWAY FROM OSMELLIO! He doesn't need cooties!!{\i0  {\f0\par
}}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Biopsies 
of the skin were taken. Results will be in tomorrow. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Cardiology
 consult was done, EKG will be done tomorrow. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Bone marrow
 aspiration, scope w/ biopsies this week!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Thanks for
 everything. I will update you all tomorrow after rounds. (approx. 10 am give or
 take) {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\ul\f1\lang1033\fs18\kerning28 a.m.{\ulnone
 {\f0\par}}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Everyone 
thank Mike for updating the website for us earlier!!! i called him and he did it
 for me!!! YAAAH thanks mike (Sebastian's dad) {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello and
 I arrived in Miami at 4 pm, Tuesday. There was not an available room on the transplant
 floor (PTSU), so we were on another unit. This morniong at around 10 am we were
 moved to the PTSU... {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 I will be
 able to update more frequently - seeing as we now have an internet connection!!! 
{\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 On the agenda
: {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Dermatology
 - skin biopsy {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Renal consult
 for High blood pressure. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Cardiology
 - Echo of the heart, to rule out cardiomyopathy. (this can happen with increased
 Prograf) {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Scope and
 biopsy of the small and large intestine, under sedation. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Bone marrow
 aspiration check for donor cells in bone marrow. If the cells are in the bone marrow
 as well - there may be another course of action that is to be taken in addition
 to campath. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Othello has
 had a LOT of blood drawn this morning. They are sending off to various labs for
 results. There will be one more blood draw before the campath is administered. 
{\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Today, they
 will give Othello the Campath (see FAQ page) to treat the GVHD. Last time, the 
campath got rid of the GVHD in about 48 hours. Hopefully it will do the same again
. {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 Afterwards
, Othello will be on isolation. No visitors please!! Any RNs, Docs, etc. that enter
 will have to glove, mask and gown up! No cooties for the Othello!! {\f0\par}}

\pard\nowidctlpar\nooverflow\sl240\slmult1{\f1\lang1033\fs18\kerning28 I will update
 later in the day - after treatment is started. {\f0\par}}

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